Monday, May 5, 2014

For David: RIP

Today’s post really doesn’t have anything to do with cancer, except that when you go through a cancer journey, death always seems like it's just around the corner.  For years after you finish treatment, it feels like it’s dogging you, hiding in the shadows, waiting until you let down your guard, to come for you.  A fellow survivor called her post-treatment life ‘the in-between place’ – the time between when she emerged victorious, and when cancer would inevitably come back and kill her.  And for a cancer survivor, this is part of what they call the ‘new normal’.  It fades over time, but it’s always there – the shoe that could drop.

This week the shoe dropped on someone else, someone who wasn’t even ill, someone whom I have loved for many years and whom I will miss immeasurably.

My friend David was one those people who could light up a room with his energy.  He was silly, he loved to laugh, but when you needed him, he could be fully present with you - in the moment with you.  I remember calling him for legal advice when I received my cancer diagnosis (he was with the EEOC in Phlly at the time) and I said, “I am going to tell you something shocking, but please, I need clear-headed thinking right now, so can you hear it, put it aside, and give me some advice?”  So I told him and there was a moment of silence on the other end of the line and then he said, “I’m so sorry.  What do you need to know?”  At the end of the conversation he said, “Please call me back when you are ready to talk about the rest of it.  I will be here.”

I met David in college, when we were cast opposite each other in a Gilbert and Sullivan operetta. We had been moving in similar theatrical circles, but that’s when we bonded, when I fell in love with his energy, and his wonderful snarkiness.  We got to know each other while we dyed our hair weird colors, smoked cigarettes out of long elegant holders, and observed (and caused) backstage drama.  He was a musical genius, and the life of the party, and the man who came up with both the theme for ‘No L News Years’ (it’s a roman numeral thing – I made a bathroom sign that said “Pease, don’t forget to fush!”) and convinced another friend of ours to sign a legal contract prohibiting him from playing the song “Disco Duck” for 20 years or so. (Thanks again for that buddy!  Sorry, Jay.)

After college, David went to law school (and yes, occasionally I thought, goofy, snarky David, a lawyer?)  but he was brilliant at it, and spent most of his career fighting for equal rights for all of us.  He spent his most recent years championing marriage equality and I was honored to be a guest at the civil union ceremony where he legally bound his life to that of his partner Stephan.  I have been to a lot of weddings, but rarely have I felt so much joy at a union. Stephan came into David’s life, smoothing the rough bits, and amplifying the good bits.  I saw how a person can thrive when he is well-loved, by watching them together.

David passed away last week, after suffering a heart attack.  He was 47 years old. Because he lived 1,000 miles away and I didn’t see him as often, his passing still doesn’t seem real to me, although I don’t think I have cried this hard or this much in long, long time.  My heart breaks for Stephan, for David’s family, for his BFF Naomi, and for our little college troupe of friends– the loss is incomprehensible and while I expect that we all will heal over time, the world will not be same without him.


Those of you that know me or that follow my blog know that I always try to find the lesson or the silver lining in events, having learned by facing my own mortality that I have a choice about how I live, and how I feel, and how I see the things that happen in my life.  This one is tough. There isn’t a silver lining, but I am holding on to the happy memories of my friend, and I am so grateful that he passed through my life.  I wish you all had known him.

Thursday, January 30, 2014

Look Both Ways Before You Cross the Street!

Today I told my therapist that I am reasonably certain that I will live a long life and die from old age.  It came up in a conversation about Tamoxifen vs. Arimidex (pre vs. post-menopausal anti-estrogen medications) and the fact that my “chemo’d” ovaries can’t decide if they are ready to give up or not.  There are new protocols for Tamoxifen, suggesting that 10 years is better than the previous recommendation of 5, and frankly, that annoys me as I am not a huge fan of the side effects.  Her point was that to understand the literature and make an informed decision with my doctor.  My point was that I feel pretty confident in my future health, so whichever anti-estrogen medicine I take, I know I will be fine.

Now yes, as I type those words I am tempted to reach out and knock on the wood coffee table or spit between my fingers (how my bubby used to scare away the evil eye), but really, it’s how I feel.  I feel lucky.  For a long time I was waiting for the other shoe to drop, and while I realize it still can, I also realize I could get hit by a bus, or fall down a well, or die in a plane crash. While those options are probably more remote for me than dying from cancer, they all seem about as likely.


When I coach with new cancer survivors they usually tell me that they can’t imagine a life without the fear of cancer hanging very low over their heads:  Fear of recurrence, fear of more treatment, fear of dying.  Each little ache and pain, each routine follow-up appointment or scan brings it all rushing back.  I explain to them that as they spend more time feeling well and making new ‘non-cancer’ memories, that fear will recede.  It never completely goes away, but I have fewer and shorter fear episodes than ever these days.  

I tell them that it all comes down to deciding how you will approach today, the day you have, knowing that the future is uncertain.  Whether you will die from cancer, from old age, or get hit by that bus, you have today and you get to choose how to live it.  I choose to live today feeling lucky.  It’s easier now than it used to be - I have, after all, been cancer free for over six years.  But I promise that you can do it too.  It just takes time and some new memories.